Helpful Links

INFORMATION FROM THE MAYO CLINIC:  http://www.mayoclinic.com/health-information/ (click)
This option starts the interactive multimedia tutorial, which includes questions.

MEDSCAPE (click) A summary of diagnosis and treatment methods, MEDSCAPE is the most authoritative and accessible point of care medical reference available to physicians and other health care professionals on the Internet. The evidence-based content, updated regularly by more than 8,000 attributed physician or health care provider authors and editors, provides the latest practice guidelines in 38 clinical areas.

MEDLINEplus (click)
MedlinePlus is the National Institutes of Health’s Web site for patients and their families and friends. Produced by the National Library of Medicine, it provides relevant information about diseases, conditions, and wellness issues in language you can understand.

 MYASTHENIA GRAVIS FOUNDATION OF AMERICA (click)
MGFA’s website contains a broad directory of resources for those living with MG, their family and friends. 

 NEUROLOGY NOW MAGAZINE (click)
Neurology Now, an official publication of the American Academy of Neurology (AAN), provides patients and their caregivers with credible, up-to-the-minute, balanced coverage of the latest advances in neurology research and treatment.

I.G. Living is a magazine dedicated to bringing comprehensive healthcare information, immune globulin information, community and reimbursement news and reesources for successful living directly to immune globulin consumers and their healthcare providersIVIG RESOURCES (click)

Click on the link below.  It will take you to the Myasthenia Gravis page of the National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/myasthenia_gravis/detail_myasthenia_gravis.htm (click)

The American Autoimmune Related Diseases Association is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through fostering and facilitating collaboration in the areas of education, public awareness, research, and patient services in an effective, ethical and efficient mannerhttp://www.aarda.org (click)

For those living in the Kansas City Metro area, call 211 for a free, confidential, nationally accredited information and referral service available 24 hours a day.  By dialing 2-1-1, a single call connects you with trained call specialists who will guide you to resources to assist with your specific situation.  The data base contains information on basic needs such as housing, shelters, food pantries, health resources for prescription expense assistance, dental care, senior services, vocational education, school supplies, school/children’s educational services, substance abuse, counseling, medical equipment, free income tax preparation sites, volunteer opportunities, child care, GED preparation and many othershttp://www.unitedwaygkc.org/our_work/211.html (click)

The magazine of the Multiple Dystrophy Association and link to their website.   quest.mda.org (click)

 

OTHER HELPFUL WEBSITES:

U.S. National Library of Medicine http://www.ncbi.nlm.nih.gov/

American Academy of Neurology www.aan.com

Muscular Dystrophy Association (put ‘myasthenia gravis’ in search box) www.mda.org

American Academy of Neurology www.aan.com

Mayo Clinic www.mayoclinic.com/health/myasthenia-gravis/DS00375

Learn about trials, find trials and personal stories www.nih.gov/health/clinicaltrials/

Talk to a neurologist online www.justanswer.com/sip/neurology

 ONLINE SUPPORT GROUPS:

http://www.dailystrength.org – - click on “Support Groups”

http:/www.mdjunction.com/myasthenia-gravis - – also click on “forums”

http://www. groups.google.com/health,groups.yahoo.com/group/MGC7HT3

WEBSITE TO KEEP YOU CONNECTED TO YOUR FAMILY & FRIENDS

CaringBride provides websites that connect people experiencing a significant health challenge to family and friends, making each health journey easier.  http:www.caringbridge.org/about

LOCAL DISABILITY ADVOCACY ORGANIZATIONS WITH OFFICES IN KANSAS & MISSOURI

The Whole Person:  The Whole Person, Inc. provides a variety of community-based, comsumer-driven services to people with disabilities to promote consumer control and choice of services, self-direction, empowerment, independence, self-reliance, self-help, self-advocacy and integration into the communityhttp://www.thewholeperson.org/

Coalition for Independence:  The mission of the Coalition of Independence is to faciliate positive and responsible independence for people with disabilities by acting as an advocate for individuals with disabilities, providing services and promoting accessibility and acceptance.  http://cfi-kc.com/ 866-201-3829

USEFUL RESOURCES ESPECIALLY FOR KS & MO  CLICK HERE