The MGA is committed to providing education for MG patients and for their family and friends, as well as for the general public and for health professionals. Please request these materials by calling (816) 256-4100 or firstname.lastname@example.org. Contributions to cover the cost of these materials and postage are always welcome.
New Member Packets – The MGA distributes packets to any new member (regardless of how long they have been diagnosed) or for others interested in learning more about MG. The packets include recent newsletters, information on exercise, emotional support, referral services, MG ID cards, as well as brochures on treatments, Social Security Disability, medical alert jewelry and a host of related topics.
Brochures – The MGA provides free informational brochures which describe MG and services provided by the MGA. Please contact the MGA office if you would like brochures to distribute.
MGA PROMOTIONAL BOOKLET-OUR STORY (CLICK)- A 13-page booklet describing MG and our association was developed for our 50th Anniversary and serves as an excellent marketing tool. If you have family, friends or business contacts that may be interested in making a donation or sponsoring an event, please request this booklet which “tells our story”.
Specialized Booklets – The MGA developed two comprehensive booklets in 2011: Preparing for Travel With MG and Preparing For Medical Emergencies With MG. They are available for download or by e-mail in pdf format. Click on the booklet names below to download:
PREPARING FOR MEDICAL EMERGENCIES BOOKLET CLICK HERE
PREPARING TO TRAVEL WITH MYASTHENIA GRAVIS CLICK HERE
CLICK HERE TO DOWNLOAD
Professional Manual from the Myasthenia Gravis Foundation of America – Visit http://www.myasthenia.org (under Professional Education) and order online or call (800) 541-5454 to order. The book is $12 and is an excellent resource for all of your health care providers – talk to your physicians and encourage them to request a copy, or better yet, to make sure your doctor has a copy, request one yourself and give it to him/her!
This resource guide provides information on a national and local level including links to Medicare, Medicaid, Social Security Disability, services for seniors & disabled, caregiving, MG medication patient assistance, helpful websites, online support groups and more. USEFUL RESOURCES ESPECIALLY FOR KS & MO CLICK HERE
DRINKING AND MG CLICK HERE
DENTAL TREATMENT AND MG
In most cases dental procedures should cause no problem for someone living with Myasthenia Gravis, however more serious dental treatment should be managed by dental staff. Of uppermost concern would be avoiding the potential for harmful drug interactions, monitoring oral side effects of drugs and therapies used to treat MG and modifying dental treatment to accommodate altered muscle strength. Sometimes oral infections or anticipating significant dental work to be done may make your MG symptoms worse. Short-duration morning appointments will minimize fatigue and take advantage of greater muscle strength. Appointments are best scheduled one to two hours after taking Mestinon or Prostigmin so as to benefit from maximum therapeutic effect and decrease the risk of MG weakness or crisis.
Speak up and tell the dentist if you’re straining to keep your mouth open, as s/he can use a mouth prop to hold your mouth open. Dental treatment is usually done in a reclining position. Let your dentist know if you are so far back that you feel like your throat is closing off or you are having difficulty with breathing or handling your saliva. Let your dentist know if you will need frequent rest breaks during treatment.
DRUGS TO AVOID IN DENTISTRY CLICK HERE