The Myasthenia Gravis Association (MGA) is a nonprofit association with partial funding provided by the United Way.
We offer a variety of services for MG patients:
We work with several neurologists throughout the Kansas City area who specialize in the treatment of Myasthenia Gravis. Together we’ve established MG clinics at each of their offices (St. Luke’s Health System and KUMC) where patients are seen for for diagnosis, testing and ongoing treatment of MG. Our staff or volunteers are present at clinic appointments to offer education, information and support.
The MGA provides individualized education and advocacy. Our trained staff and volunteers counsel newly diagnosed individuals and their families to help adjust to living with MG by providing information and resources offered through the MGA. This includes one-on-one consultation, education, social service referrals and visits to patients should they be hospitalized. We also provide New Member Packets free to those who are new to the MGA and living in Kansas or Missouri. For those patients who are living outside of Kansas and Missouri, New Member Packets are free with the cost of a membership. These packets include information on MG, its treatment and living with the disease. We also refer patients to neurologists who specialize in the treatment of MG.
We sponsor patient support group meetings which provide MG patients and their caregivers with a resource to better understand and cope. Typical meetings feature special presentations and present an opportunity for informal sharing of information among attendees.
The MGA publishes a quarterly newsletter and other informational materials such as brochures and articles of interest.